Project coordination
Pr. Rima Nabbout
Rima Nabbout has been a professor of Paediatric Neurology since 2014, and the director of the National Centre for Rare Epilepsies since 2006 at Necker-Enfants Malades Hospital. She received a MD in 1990, a Ph.D. in Neurosciences in 2003, and a « Habilitation à Diriger des Recherches » (Accreditation to supervise research) in 2010. More recently, she holds a research and academic position at Institut Imagine in the team “Translational Research for Neurological Diseases” where she leads the epilepsy research program.
Paris Cité University
Professor of paediatric neurology
Coordinator of inter-universitary diploma in paediatric neurology
Necker-Enfants malades Hospital
Director of the reference centre for rare epilepsies
Founder member and member of EPICARE
Work package leader ERDERA program
Institut Imagine, UMR1163
Coordinator of Innov4-ePiK program
Director of the GEEN-DS Chair
Epilepsy research program leader
In parallel of these activities, she is profoundly involved in different aspects of the rare diseases policy to improve the patient healthcare management at the national, European, and international level. She is the President of the scientific committee of the French National Bank for Rare Diseases (BNDMR) since 2019, member of 3 international leagues against epilepsy (ILAE) task forces, member of the scientific committee of the French chapter of the ILAE, as well as a founding Member of the steering committee of EPICARE (European research network on rare epilepsies) since 2017 and Pillar 4 (accelerating therapies and innovation in rare diseases) co-leader for the European Joint Programme on Rare Diseases (EJP-RD). She is also a member of the SAME IRDIRC task force on shared molecular etiologies and I participated to FP6, FP7 and Horizon 2020 EU projects. To date, she is currently coordinating two European projects, IDEAL-EPISTOP and i-Store (EJP-RD), a RHU (national granted project in the frame of France 2030) named Innov4-ePiK and co-ordinating ERDERA and RealiseD programs. Finally, she has been acted as a PI for major international trials on epilepsies and rare epilepsies clinical trials lead by the industry.
